Raising my Voice: My Thoughts on the Proposed Canadian Service Dog Standards

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We’ve all seen the news stories about people bringing their pets into public spaces and pretending they are service dogs. We’ve all been angry at the dishonesty, the danger to ourselves and our legitimate service dog teams, and have various ideas on how to combat this. Some propose service dog registry and identification; others place the burden on businesses to exercise the rights they do have (notably to ask the handler of an aggressive or disruptive dog, service dog or not, to remove it from the premises), rather than the people with disabilities who depend on service dogs to live fulfilling independent lives. Still others want governments to take action.

In Canada, an organization in the Public Works and Government Services (not a government committee) – made up of representatives from service dog training organizations, veterinarians, advocacy groups, regulatory bodies, and individuals – has been hard at work for two years to create a national standard for service dogs. Their stated objective is to provide a universal standard for service dog teams. Over the past month, many friends and advocacy groups have sent the draft standards to me, advising me that there is a public consultation phase that ends on July 14. As I know several groups and members who have helped draft this proposed standard, I chose to take my chances and hope for the best. But as emails and facebook posts flooded my phone and computer this past weekend, I realized that I couldn’t bury my head in the sand anymore. I had to figure out just why my phone was going crazy.

I read the standard, beginning to end, and will be submitting my comments to the board.

What The Committee Is Not

This is not a bunch of egotistical, evil people out to make life harder on service dog teams and handlers. While training programs had voting power, other advocates, professionals and owner trainers had votes in the meetings as well. This is a large group of people, all of whom have valid concerns and objectives: to make sure service dogs, handlers, and the general public are safe. If you choose to comment on this post, please be forewarned that I will delete any personal attacks against the committee or disrespectful talk about how you will never visit my country. If you can’t offer anything constructive (be it praise or criticism), keep it to yourself.

What this Document Is Not

This document is not current legislation. Even if it passed as is tomorrow, it is not law. While it may be used to create universal legislation across the country (so that someone in BC won’t undergo stricter scrutiny when they travel to Saskatchewan), legitimate service dog handlers can wake up on July 15 (after the open consultation period) and go about their lives, hopefully with no public interference.

This document is not a declarative statement on where a Canadian can train for a service dog. I’ve seen a ton of fear-mongering on this topic, that the board is saying Canadians can’t train in the States, and no where is this stated or implied. Guide and service dog programs may be concerned about their ability to serve Canadians due to the standards, but the standards themselves, as written, do not restrict location of training. There are enough legitimate concerns in this document without creating more.

This document is not permanent. That’s why it’s called a “draft”. For future readers of this blog, anything written below is paraphrased from the draft standards published on May 2, 2017. It’s a living document; it will change. We as Canadians can make our voices heard by providing feedback through the Web site. We have an opportunity to push for change, to offer suggestions, in a way that is seldom available. Take it!

What They Got Right

This document is thorough. Whether you agree with it or not, it’s a long comprehensive document. People with a wide variety of disabilities are represented, along with a non-exhaustive list of tasks their corresponding service dogs can perform. It touches on everything from training and behavior to realistic expectation, equipment fit, first-aid… I could go on and on. No one can accuse the standards board of not considering any situations. The needs of both service dog and handler are referenced throughout, with great emphasis being placed on the biological and emotional needs of the dog. The rights of persons with disabilities to access public spaces safely with their service dog are well-documented.

Unreasonable Intrusions

But while it’s clear these standards indicate that handlers should have realistic expectations about their service dogs performing learned tasks or learning new ones, their expectations of obedience are higher and, frankly, not as realistic. According to the draft standards, a service dog must respond immediately to obedience commands, on or off-leash,  in all conditions and circumstances. While later in the draft, there is mention of intelligent disobedience (when a dog disobeys a direct command when it is unsafe), the words “under all” do appear related to obedience (Section 4.2.2).

But what is not specified anywhere in this document is who can assess – and how frequently – whether the handler has “enough” knowledge on any of these things, or when the dog is obedient “enough”, even off-leash, in the home? It does appear that an assessor will at some point enter the home of a person with a disability, just because they wish to use a service dog, and I do wonder about an intrusion of privacy that no pet dog owner has to undergo.

There is also particular concern about the equipment used by a service dog team. Based on the current draft, any slip collars, E-Collars, prong collars, or muzzles would not be considered appropriate equipment (section 5.2.1.1). While I personally have strong opinions on my dog with equipment, it is not my place to judge another handler’s appropriate use of tools; even a flat-buckle collar can be used in an abusive manner. I have used a head halter (frequently mistaken for a muzzle, even though my dog can fully open her mouth while wearing it) to re-shape behavior; this standard does not address that at all. If we are responsible enough to handle service dogs in public, we should be treated as responsible enough to use appropriate tools humanely to mitigate behavior or receive tactile feedback.

A brief note about identification: several people think identification is a good way to weed out the fakes. Section 7 addresses the information that would be made available on identification (on a service dog’s harness/leash, or ID card carried by the handler). It does not appear to provide provision for those who wish or need to make their own equipment or buy from manufacturers whose equipment fits their unique needs as a service dog team, but does not readily identify “service dog”. These draft standards do not – nor can they – address who can ask for service dog team identification, under what circumstances.

One of the many other concerns I have is statements regarding separating dog and handler. Section 5.2.3.3 states that the service dog will “tolerate” removal from the handler (by whom?) when required by circumstance. The draft indicates this will be inspected (section 8.2.2.3) by having a person unknown to the dog promptly remove the dog from the handler and walk away a minimum of 6 meters. While I understand this is to test for aggression, as a visually impaired person who has had her dog forceably removed from her, this is traumatic, and does not show compassion and understanding (as stated in the goals of the inspection). As an aside, my dog might be tolerant of being separated from me, but I wouldn’t be! It would be like someone driving a car and the passenger just ripping off their glasses.

Other Concerns/Questions

A few questions I pondered while reading the standards. At what stage of the service dog’s working life these inspections are administered. What do owner trainers do? Where are the inspections held? How frequently? Who pays for travel? Does the handler have the right to access public spaces before the inspection? Does a Canadian who receives their dog from an American source have to undergo additional testing? So many more questions about the logistics that the standards themselves cannot address. They are only the first step in a complicated process which will need regulatory and legislative bodies to implement and enforce. Many (myself included) have grave concerns about the implementation of the standards. These concerns are not without merit. But at the end of the day, these standards can provide a foundational framework in which all service dogs, handlers and the general public can feel safe alongside each other.

So where do We Go from Here?

I will not throw the baby out with the bathwater. I have had friends whose service dogs have had to retire because of attacks by overly stressed legitimate service dogs or encounters with out-of-control pets in vests. Standards, by themselves, are not a bad thing, and I do see some value in these proposed standards of behavior by both handler and service dog. However, I think there needs to be much more clarity about the inspection process and the access rights of a person with a disability using a service dog. If someone owner-trains their service dog and/or uses third-party equipment without “service dog” markings, are they still protected by each province’s Human Rights legislation? If so, then there needs to be more education of service providers about when a disruptive or aggressive service dog team can be asked to leave, and more teeth to penalties for impersonating a person with a disability to take a pet dog into public.

While I believe there is the best of intentions for this standard, I question its enforceability and the potential intrusion it places on the lives of people who already receive strict scrutiny. While the commentary period is open until July 14, raise your voice in constructive ways. Don’t only point out what’s wrong, but how it could be better. And above all, don’t forget to indicate what was done right.

Book Review: Love and First Sight

I picked up this book during a period when I needed something light to read. Something very very light.

And I’m not really sure that’s what I got.

 

Love and First Sight

By: Josh Sundquist

In his debut novel, YouTube personality and author of We Should Hang Out Sometime Josh Sundquist explores the nature of love, trust, and romantic attraction.

On his first day at a new school, blind 16-year-old Will Porter accidentally groped a girl on the stairs, sat on another student in the cafeteria, and
somehow drove a classmate to tears. High school can only go up from here, right?

As Will starts to find his footing, he develops a crush on a charming, quiet girl named Cecily. Then an unprecedented opportunity arises: an experimental
surgery that could give Will eyesight for the first time in his life. But learning to see is more difficult than Will ever imagined, and he soon discovers
that the sighted world has been keeping secrets. It turns out Cecily doesn’t meet traditional definitions of beauty – in fact everything he’d heard about
her appearance was a lie engineered by their so-called friends to get the two of them together. Does it matter what Cecily looks like? No, not really.
But then why does Will feel so betrayed?

Told with humor and breathtaking poignancy, Love and First Sight is a story about how we relate to each other and the world around us.

 

What I Loved

As I read this book in audio format, I loved the narrator. he became Will. With the exception of a really horrible Italian accent for one of the characters, the narrator’s characterization was superb. As for the book itself, I’m thankful that Will is not a loner – he hangs out with the super-smart kids – and he’s a practical joker (as evidenced by Will’s response when he is asked to touch someone’s face). The author did an amazing job of recreating a situation where someone is treated differently because they are blind, but he doesn’t leave it there, showing Will (and us) that some people do “get it.” Will also seems to possess a certain amount of awareness about himself and the world around him, and yet he wants to be able to conceptualize visual information when he meets Cecily, whose photography hobby is a foreign world to him.  This book does ask important questions about vision, autonomy, independence, helicopter parents, even though I found myself vastly disagreeing with its conclusions.

 

But Mooooooooom!

I could devote an entire blog post to the real-life counterparts to Will’s mother. She is the embodiment of a helicopter parent. Mom packs Will’s lunch every day, braille labeling the containers, wanting to hover at every opportunity. She insists that he wear big dark sunglasses to school (unlike some more stylish options he can wear), and Will just seems to go along with it after he freaks out Cecily by unintentionally staring at her.

This meddling is not new. As a young boy, when another child takes advantage of Will’s inability to see, instead of teaching Will how to handle that situation, his parents ship him off to a school for the blind. Ten years later, Will is trying to find his way, and his mother is smothering him… until, suddenly, she isn’t? And Will realizes that her hovering is preparing him for independence? And we’re all somewhat dependent on each other? Um… what?

The Disability Cure Trope

When Will begins to regain his vision, his confusion and exhaustion are obvious. The author does a great job of describing in general how exhausting it is for a brain to completely re-wire itself to process things differently. However, unlike Mike May in “Crashing Through”, Will’s parents do the initial leg work with him and his identifying of objects. I had a hard time with the disability-cure-leads-to-happiness idea, particularly since Will was never certain he wanted the operation to begin with, and the idea that Mom and Dad are teaching him to “see” just rang hollow and like the author didn’t feel like doing some research.

Speaking of Research

There were some truly cringe-worthy research blunders in this book. For example, Voiceover reads textx, not Siri. While in some ways the author adequately described the dynamics at a school for the blind, and the frustrations of electric cars, he also completely misnamed someone who teaches the blind to navigate as an “Orienteering and mobility guide.” One of Will’s friends wants to help him and Cecily deliver the morning announcements at school, does a bit of research, and asks Will if he’s heard of a refreshable braille display (Will has, but doesn’t have one). Buddy is able to procure one (something that costs thousands of dollars) in a matter of just a couple of days, and he (not Will) is the one to set it up. A little research would have gone a long way to making this book so much better… but as a fun aside… Do Scratch ‘n Sniff stickers come in gasoline and smelly socks?

 

Conclusion

The above paragraphs sound like I hated the book. In fact, I didn’t hate it at all. I had a really hard time with some ideas within, and I’m always very frustrated if an author decides not to do their homework. But it’s a fun way to spend some time, and it’s written in an engaging style that made me smile. I grew to love Will and Cecily and their friends. Even Will’s Dad grew on me. Take a ride with Will, Cecily and their friends; it’s a mildly wild one.

3/5 stars.

Have you read this book or any of the others I’ve reviewed? Leave a comment in their comment sections, and let’s chat about it!

Summertime… when I Feel More… Respected?

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This time last year I remember (and facebook reminded me) getting up for a 9:00 AM job interview. I opened my eyes and got hit with a sudden burst of intense stabbing pain… right in both eyes. I had two options: reschedule the interview (as I had already done the day before because I was feeling absolutely awful) or attend the interview with a light-sensitive migraine. If I chose the second option, I had two options stemming from that: suffer through it, or do the somehow stereotypical “blind” thing and walk in with sunglasses.
It was far from an easy decision. To me, sunglasses were for sunny days, not moderately cloudy ones, and absolutely never ever ever indoors. I looked so… blind in them (I still don’t know what I meant by that thought). When I asked several people I knew – sighted and blind – through the instant question-answer format of social media, I received so many answers, and many conflicted with each other. All paraphrasing is mine, but the general ideas went something like this.
“Absolutely not! Your interviewer NEEDS to at least have the semblance of eye contact.”
“Why not? Your eyes hurt; you need to be functional.”
“It’s SUCH a blind thing to do.”
“If they’re fashionable, wear them!”
I chose to wear the sunglasses. They had been purchased years before and were both fashionable and moderately functional for my purposes. The frames were basic black with round lenses, and they didn’t scream “blind person!” to anyone who looked at them. The instant I put them on, just before leaving my house, I felt my entire face relax, and the stabbing pain in both eyes magically disappeared.
The interview bombed. It bombed worse than almost any other interview I went on the year I was unemployed. It had nothing to do with my glasses, my headache, or anything else. The job and I were simply not a good fit.
But when I left the interview and went about my day, my sunglasses still in place, I noticed something else I hadn’t considered before.
People treated me better.
You see, if you were to look at my eyes directly, you would know that I am blind. My left eye is, for all purposes, unusable. My right eye won’t stay still. Walking down busy downtown streets that morning – even with a guide dog – while wearing those sunglasses, people seemed more inclined to make general non-blindness-related conversation with me, or accepted my assertions that I didn’t require their assistance. This old pair of sunglasses seemed, in a way, to be magical to me, to open a doorway to some previously rarely-found milieu of autonomy and dignity.
During the course of a few weeks, the more I wore my sunglasses, the less blind I appeared to others. The less blind I appeared, the more people left me alone (or at the very least respected my polite declining of their assistance, something they offered less frequently). I loved how it felt.
But those glasses I wore to that interview no longer flattered my face the way they had years ago when I had first purchased them. I needed, as a friend stated, a more fashionable pair.
So what does a girl do when she needs a stylish pair of sunglasses that she doesn’t need to see clearly through? She goes to Walmart, and finds the coolest, most professional-looking pair of sunglasses they have that also covers her eyes and flatters her face. I spent a grand total of $15 on my sunglasses, and the complements from friends, family, and strangers make me feel like I should’ve spent more. And when I wear them, people generally treat me better, like I’m any other office worker or customer or pedestrian.
I wonder why that is.

And I wondered why I had resisted them for so long.

When discussing this topic, I had no idea the types of division I would stir up. Some people were very comfortable with their choice to wear glasses, others firmly confident in their decision not to, and many fell somewhere in the middle. Comments ranged from “No blind person should wear glasses, ever, because it makes them look pathetic,” to “I wear them on sunny days because the glare bothers me, but I’m still uncomfortable doing so… it’s such a blind thing to do,” to “I wear glasses because my eyes hurt otherwise,” to “I wear them because I know my eyes are damaged due to accident or illness, so I wear them for the general comfort of those around me.” Others hadn’t considered them one way or the other, either because they were never encouraged to wear them, or because it was really never an issue; while my sunglasses made me look “less blind”, some believed that their wearing them would call attention to their blindness in a way that their uncovered eyes never do. Still others believe that wearing sunglasses means that they are hiding a part of themselves – their blind eyes – even if they are imperfect.

But one friend, whose blindness is due to Retinoblastoma, described in vivid detail being forced by parents or teachers to wear them. She would get in trouble in school if she took them off, and even now – as a grown woman – if she’s in her family’s company, the comment is made that she needs to wear them. Like it or not, she is judged on her appearance. Retinoblastoma can sometimes lead to facial scarring that may be off-putting to some, so some may argue that if it can be covered by makeup or glasses, then why not use them? And yet, my friend has a very complicated relationship to glasses today, for the simple reason that they were pushed at her so much as a child and teenager and even now as an adult.

A simple accessory to some, to others a way to make it through the day. To some they bring freedom, to others a sense of complicated shame. I had no idea that the job interview a year ago would start me on this journey of asking questions about an accessory that most people wear without a second thought. It’s opened up far more questions for me than it’s answered, and yet, I’ve made my own piece with my sunglasses. My cute sunglasses make others more comfortable with me, which makes me more comfortable with myself. I hate that this is so. And I hate that others would receive the exact opposite reaction because their uncovered eyes don’t make them look blind.

So for now, while the days are long and the sun is so bright that almost everyone has to squint to navigate the world visually, I’ll take that automatic respect that these lenses and frames seem to have granted me. Now the question is… can this continue in the winter?

Crying Wolf!: Or, What it’s like to have a Blind-friendly Cat

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Two months ago, after days of hand-feeding and hoping and remembering and crying and realizing it was the end, we said goodbye to our beautiful Russian Blue kitten, Dash. Her ashes – along with her collar and a few tufts of fur – currently sit in a box on a windowsill where she can enjoy the sunbeams until she’s laid to rest permanently. Two ceramic pawprints with her name in raised letters sit on my computer table, where she would climb up for snuggles, as a testament that says “Dash was here.”

But Dash WAS here, and a hole opened up in our little kitty kingdom. The Boy cat and Jenny consoled each other somewhat, but they each grieved in their own ways. Annie started pacing back and forth in front of me while I was on the phone, demanding my attention, something only Dasher ever did. I could hear the echo of Dash’s meow at unexpected moments and it stabbed me in the heart, while Ben sought comfort in the other critters. We knew, very quickly, that we needed to give another Russian Blue a good home.

And we quickly found one.

Wolfie the Photogenic Kitten

We saw Wolf’s picture on the SCARS Web site only a few weeks after Dasher’s death, and we knew she was the kitty we could help, and she was the kitty who could help fill that empty space. The look on her face, and the fact that she needed to be around other kitties told us that we would all be a perfect fit. From the instant we met her, she allowed us to play with her, to pick her up, to show us her sassy side. At only six months old, she showed us that she wasn’t afraid to holdd her own against more dominant cats, and she clearly needed other kitties so she wouldn’t feel like she was all by herself.

From the moment we brought her home, she possessed such confidence and security. She did not spend one minute hiding, but instead made herself comfortable on the arms of our couches, watching everything around her, as if to ccalmly tell the other kitties, “I’m here, I’m exploring, I’m figuring out my own place in this pecking order… you, deal with it.” Within only a few weeks, she went from a clumsy uncoordinated six-month-old kitten to a growing, purring, playful bundle of energy. She and the Boy wrestled and played not long after Wolfie came home, and the difference in the Boy, too, was startling.

It’s fun, learning how to communicate with a new, young cat. We’d taken for granted the quirks of Annie, Dash and Wayne, knowing on instinct their favorite toys or when they preferred snuggles or how they liked to tell us to please for the love of God change the litter boxes. Wolfie through all of that into disarray. We learned very quickly that the way to her heart is toy mice, that she and the Boy will stand side by side when food is poured into the bowls, that her favorite sound is the sound her claws make while she tries to climb up the window screens. She has different meows that we’re still trying to decipher, but most of them seem to indicate a brief, “Hi! I’m here!” She doesn’t seem to like the bell on her collar or her license tag, as evidenced by the fact that she can crane her neck down and bite at the tag at any opportunity. Wolfie has no interest in going outside, but she loves to spend hours in the breeze by the back door.

But why would I say she is a blind-friendly cat?

With me, she is not silent. Ever. She actually comes to her name about 80% of the time. The rest of the time, when I call her, she will announce her presence with a quick meow or a jingle of her collar. If I put my hand down after calling her, she will put her nose up against my fingers, then let me pick her up for a snuggle. Even if I’m near her, petting another kitty, her loud kittenish purr gives her location away instantly. She communicates in her own way with Ben, of course, but I’ve learned she only seems to do these things with me, as though she understands that if she wants to get my attention, tactile and verbal cues are the way to do it.

Wolfie will never replace Dash, not really. But some of her quirks make it feel like Dasher is still here with us. Sometimes, we have to stop ourselves from calling Wolf “Dash”. That gets easier with time, and as Wolf grows into a more confident, stronger kitty. She’s slid herself into our kitty kingdom almost seamlessly; and even though she and Dasher never met, I think they would’ve been friends.

Welcome home, Wolfie. We’re happy to have given you a fur-ever home. Thank you for loving us, for making us laugh, for keeping us on our toes. And Dasher… if you sent us this kitty, thank you, too, sweet girl. Enjoy your sunbeams.

Book Review: Eyes Wide Open

Over the past few months, I seem to have found myself reading books on self-improvement (working on sales skills, overcoming rejection). And biographies and autobiographies of people with disabilities (because we are all on a similar journey with many paths). A few months ago, I read a terrific article about taking a step back and trying not to read someone else’s intentions and the importance of communicating effectively. When I discovered the author of the article wrote a book, I snapped it up quickly, hoping to be able to learn a few things. I did, but not in the way I expected.

 

Eyes Wide Open

By: Isaac Lidsky

In this New York Times bestseller, Isaac Lidsky draws on his experience of achieving immense success, joy, and fulfillment while losing his sight to a blinding disease to show us that it isn’t external circumstances, but how we perceive and respond to them, that governs our reality.
Fear has a tendency to give us tunnel vision–we fill the unknown with our worst imaginings and cling to what’s familiar. But when confronted with new challenges, we need to think more broadly and adapt. When Isaac Lidsky learned that he was beginning to go blind at age thirteen, eventually losing his sight entirely by the time he was twenty-five, he initially thought that blindness would mean an end to his early success and his hopes for the future. Paradoxically, losing his sight gave him the vision to take responsibility for his reality and thrive. Lidsky graduated from Harvard College at age nineteen, served as a Supreme Court law clerk, fathered four children, and turned a failing construction subcontractor into a highly profitable business.
Whether we’re blind or not, our vision is limited by our past experiences, biases, and emotions. Lidsky shows us how we can overcome paralyzing fears, avoid falling prey to our own assumptions and faulty leaps of logic, silence our inner critic, harness our strength, and live with open hearts and minds. In sharing his hard-won insights, Lidsky shows us how we too can confront life’s trials with initiative, humor, and grace.

 

Autobiography

You learn early on that Isaac Lidsky has lived an exceptional life for someone who hasn’t yet turned 40. he’s starred in a hit TV show, clerked for not one, but two, Supreme Court Justices, owns his own company, and is a father of four.
The autobiographical portion of this book is told in “fishing Trips”, lighthearted reads, non-sequential essays. You know his wife gives birth to triplets and health problems arise, but you learn this in the early stages of the book, and don’t learn the outcome until closer to the end. His taking over a struggling construction company is detailed first, then, the next “Fishing Trip” essay is about a threat to his employer (a Supreme Court Justice) three years earlier that included his taking a motorcade to a cigar bar. The autobiography is compulsively readable, but it’s hard to follow, because it’s not written in any linear fashion.

 

Journey Through Sight Loss

 

From teen heartthrob to law clerk to entrepreneur, Isaac Lidsky has worked hard to get where he’s at, but he had to first come to terms with his declining vision. He believes that he would not be the person he is today without having lost his vision. When addressing his own journey to sight loss acceptance, he uses terms such as “awfulizing” (considering and brooding on a worst-case scenario). He acknowledges that many people view losing their sight as terrifying – he was once one of them – but likens it to a child who fears a monster under the bed and has to be told again and again that there are no monsters. His way of expressing his own journey through sight loss – from denial to resignation to acceptance – is refreshing; he acknowledges that he has to remind himself that others are where he once was, and needs to take that step back and allow them to fear the “monster” of sight loss and learn the truth about the “monsters.”

 

Self-Help: Eyes Wide Open

 

The self-help aspects of the book were where most of my conflict lies. There’s not a lot new here, though some of the analogies put into great words things I’ve never been able to express. Everyone has had an experience where they knew they saw a neighbor, an acquaintance, or a coworker somewhere… only to call their name and discover it’s not them. Heck, even someone who knows me had a similar experience. Lidsky uses this universal experience to drive home the point that perception is not reality, and we would do well to remember that.

But what is most troubling is his assertion that life is what you make it, that people will misjudge you but it’s up to you to not allow their perceptions of you to colour your perception of yourself, or of them. This glosses over the very real problems of ableism, racism, sexism that exist in our world. And being grateful that we can read and write, and live on more than $10 a day, doesn’t address very real obstacles that are placed in our path. Lidsky compares life to a game of poker – of skill rather than luck. Yes, what you do and how you respond to challenges matters – and it matters a lot – but constantly receiveing horrible cards puts you in a situation where you’re supposed to bluff your way through life, or you’re so far in the hole that no amount of skill can get you ahead in the next 27 hands.

 

Conclusion

 

Isaac Lidsky has lived a remarkable life. He has worked hard to get where he is, and I would never presume to take that away from him. But in many ways he has been given remarkable gifts of a superior intillect, a supportive family, and a drive to succeed in his chosen career and academic fields. For those who simply want a “normal” life, his advice can lead one to feel that their ordinary dreams are not good enough. The “pull yourself up by your bootstraps” ideas can make those who’ve faced very real ableism, sexism or racism feel marginalized all over again because we “let” someone else get to us and relied on luck rather than skill to dictate the course of our education or career or life.

I’m struggling to rate this book fairly, because I think it tried to be too many things to too many people. As an essayist, I like the way Isaac Lidsky expresses himself. But as a hole, I struggled to read this book straight through. Even picking apart the well-written personal essays – by turns humorous and heartbreaking – I would’ve preferred a more sequential reading. And the self-help “eyes wide open” philosophy – even though it contained some portions that will make me think – doesn’t address some very real problems that do have very real consequences. Yes, we need to step back and ask questions and listen actively, but Lidsky’s glossing over one’s perception of him as a blind man (because, frankly, he has the economic luxury to do so) and encouraging others to do the same, rings quite hollow.

Even so, this book will make you think; it will challenge you. It challenged me in some important ways.

3/5 stars.

Sugar and Spice and Everything Nice? Not on MY Life!

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About three months ago, I started a brand new job. I love my job, the people I work with, the location… all of it. Working in a big building downtown wasn’t something I ever thought I’d do again, but I’m thrilled to be where I am. Jenny and I have been welcomed with open arms by colleagues, managers, building regulars, fellow transit passengers… just about everyone.

But working in a big crowded building also brings to the forefront something every disabled person has dealt with at one time or another: the grabbers. Sure, I’ve dealt with them before in other jobs or other places, but working in a very large building open to the public 5 days a week puts me in touch with many amazing people… and many grabbers.

And you know what?

I’m done being nice to grabbers.

Over the span of the past month, I’ve had numerous encounters with someone (several someones) who thinks that grabbing my body to direct me is acceptable. My shoulders have been turned to direct me, someone steered me by the waist, my hands and arms have been grabbed so frequently (and at one point so hard) that I swear I can still feel marks on my body from the other person’s fingers. Depending on the situation, the closeness of quarters, and the willingness of the other party to observe both visual and verbal queues, my reaction is situationally specific, made in a split second, when I’m not stunned motionless and speechless by someone’s lack of personal boundaries.

But why should I have to think about it? Why should I need to make judgment calls on an appropriate reaction on a frequent basis simply because I have a disability and people get weirded out about it? Why should I have to be nice because someone “meant well”? Meaning well means asking first. Meaning well means listening to my response. Meaning well means not doing something that would reasonably get one punched, kicked, screamed at or sprayed in the face if the action was directed at anyone without a disability.

And think I’m exaggerating?

A blind friend on a facebook discussion on this very topic “only gets rudely grabbed twice a week or so.”

Only?

ONLY?

There is no ONLY!

This behavior is unacceptable. We can all agree that able-bodied people aren’t frequently grabbed, manhandled, pushed, prodded, or otherwise bodily manipulated. We can all agree that such behavior is wrong. So why does disability make it right? The fact that it happens so frequently to people with visible physical disabilities that we think it “only” happens twice a week or so should appall you. The only time to grab someone is if they are actually falling and you need to catch them, or you need to pull them back from real danger (like an oncoming bus a split second away). That does not happen twice a week or so.

My tongue bleeds sometimes from my biting all of this back, from keeping quiet, from being nice. If I had fingernails, the palm of my right hand would have half-moon shaped scars from clenching my fist in my pocket. But I’m done bleeding and scarring because of my own desire to blend in, to simply go about my day. Grabbers, you are the problem, and I’m done taking out my frustration on myself. I’m done being nice because being nice has gotten me – and society – nowhere. So your intentions don’t matter; keep your hands to yourself. I’m taking my equality into my own hands. A woman without a disability can fend off an attack? Your firm grip on my hand, wrist, arm, shoulder, hips, waist, or mobility aid without my knowledge or consent is an attack, and I will respond accordingly. If grabbing me is your way to ensure my safety, I plan on learning and training and finding out how I can keep myself safe… from you. You don’t ask me if I want your help; you think you can and should decide for me. That decision is not yours to make.

The Good Old Hockey Game

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Ahhhh, hockey, how I love thee.

Ahhhh, playoff hockey… how much MORE I love thee.

Edmonton has been gripped by hockey fever since the Edmonton Oilers made the playoffs for the first time in eleven years. Back then, I had lived in Edmonton for 18 months, had left my first job, was starting to seriously consider Bible school, and was way too broke to be attending any games.

Now, I’ve started a new job, been married for nine years, and am still too broke to attend a live playoff game…

But I could go to Rogers Place – the new hockey arena – and join what felt like the rest of the city in watching the away-game on the big screen.

 

First Period: Preparation

Our friends invited us to the Watch party at Rogers place. You get in for $5 and can watch the game on the big screen. If the Oilers had been playing at home, by all accounts we’d be spending hundreds of dollars on nosebleed tickets. But for this away-game we could soak in the atmosphere and watch the game for the cost of a pricy coffee.

Let’s go Oilers!

We all had our jerseys on – me, Ben, even Jenny! Jenn sported her running harness both for asthetic (Oilers colours!) and practical (comfortable) reasons, her Newtrix, and her MuttMuffs – we knew it would be loud!

We met our friends (who had our tickets) at Ford Hall, where the party was already started. The music was booming, and the Montreal-New York game was playing on the screen. We located our seats and asked if they had anything announcing the play-by-play of the game, and Guest Services provided us with an FM transmitter that would’ve relayed some information from the home-game announcers to a user’s headset, but not the exact play-by-play. I figured I could use my phone to stream the play-by-play, but the delay was so far back that I would miss the atmosphere and the action itself. Thankfully, as the game was streamed from a TV into the arena, I could hear more of what went on than I would’ve if it had been a home game.

We got to our seats, posed for pictures, and even got photo bombed by the cousin of a friend of Ben’s. The national anthems were sung – the whole house singing Oh Canada, remaining on their feet and singing The Star Spangled Banner.

Then… puck drop!

 

Second Period: Shots on Goal

The Oilers scored two fairly quick goals in the beginning of the second period. I felt bad that I had sent Ben to the concession for a drink for me, but he came back with food just as the second goal was scored and the crowd was screaming. As the game progressed, we started to believe that we COULD win this game – and this series – and move on to the next one. We cheered for our goals, for blocked shots, for penalty kills, for close calls. We cheered for each other, for our players, for our town.

 

Third Period: Gettin’ ‘er done, Bringing it Home

The Sharks scored a goal in the third period, and the tension ramped up. Nails were bitten, particularly when Edmonton got a penalty for too many men on the ice. The last five minutes, I couldn’t hear any of the play-by-play, so I screamed at Ben to tell me when something was going on. The cheers grew even louder, our eyes grew wide with incredulity as an Edmonton player went to shoot into an empty Sharks net and broke his stick. The last minute of the game, all you could hear was the shouting and cheering and screaming of thousands of Edmonton Oilers fans, on their feet, wanting to be heard all the way in San Jose. Edmonton’s team captain sealed the deal, and with an even louder roar, Edmonton Oilers fans raised the roof on Rogers Place.

 

I’ve been to hockey games before, particularly a memorable one in New York City, but nothing compares to this. As we left Rogers Place, buzzing with the thrill of the game, thousands of people flooded the hallways. Chants of “Let’s go Oilers!” and “We want the Cup!”, honking horns, and jubillant celebration could be heard at the arena, on the train, and on the road on the drive home.

I’ll never forget this game, and I can’t wait to see what round two will bring!

LET’S GO OILERS!!!

Rest in Peace… While I fall Apart

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I’m writing this post in the hope that I don’t have to post it. But if you are reading this, it’s a sad day in our home today. Last night, we said goodbye to our cat, Dash, after a sudden, fierce illness that we can’t completely explain. If you are reading this, Ben and I decided as a couple that the kindest thing was to let her go. I am writing this with tears running down my face, but I’m writing this now, days before the end, when I can still remember Dasher’s meow and her purr and the way she demanded attention until she decided seemingly arbitrarily that it wasn’t needed anymore. By the time this post is published – if it is published at all – it’s been nearly 24 hours since we held Dash in our arms, buried our faces into her soft fur coat, and said our farewells. It’s been nearly 24 hours since we cried at the kindness shown by the vet clinic, lighting a candle with a sign that said someone was mourning their beloved pet. While I still remember her for the gentle fighter and protective cat she is, not how she was during the last week of her life, I want everyone to know her for the quirky ball of CAT that was Dash.

Dash and Wayne settling in for the Winter

Dear Dash,

I don’t know if I ever told you these stories while you were curled up with me at night, while your purr rumbled me to sleep, while I laughed at your high-pitched, attention-seeking “Meeeeeeeeeeow!” But you’ve been part of this family almost as long as our little family existed, and my heart aches that you’re no longer making memories with us.

Ben and I talked about you, Dash… in the way of many conversations like this. The “We should get another cat… someday” conversation we had not long after we got married. We had Annie, of course, but another cat seemed like a good idea… in a someday-we-will sort of way. That summer day in 2008, we visited friends on a farm and were told one of their barn cats had just had kittens. I sat on their back porch and a little gray ball of fluff came up and demanded my attention. I lifted it up in my arms and it purred contentedly and I asked it if I could take it home. Ben was playing football with the guys, but when he came back to the porch, this same ball of fluff – you – curled up on his chest and fell fast asleep. He looked and me and asked if we could take you home. How could I say no? We drove to a friend’s house and grabbed a diaper box to drive you home in. Somehow, on that trip home, we named you Dash, and your little kitty paws and your big-kitty purr stole our hearts.

You became your name, Dash, sneaking out of the house at every opportunity, destroying Ben’s glasses your first night home, trying so hard to charm Annie who was singularly disinterested. You grew into a cat who was so particular about the “right” way to come up for cuddles (pacing back and forth three times, then hopping up), insisting there was only one way to climb up on the bed (always using my nightstand and boombox), creating the nightly ritual of sticking your paw between bed and headboard and batting at our heads, even straightening a painting you knocked askew during one of your “kitty crazies.” Trees held a fascination for you, until you tried to climb one and nearly choked yourself when you suddenly realized how high you were… and then you ran home in a huff. You broke yourself out of the habit of jumping onto the dining room table by falling through it when we took the tabletop off for refinishing. All these years later, we still laugh at your kittenness, and we never stopped calling you “Kitten”.

You grew older and wiser, your body filling out and matching the size of your big long tail, your formerly loud purr (once nicknamed the buzz saw) turning into a deep rumble. I used to ask you where you got your gorgeous gray fur coat, and for some reason you would never divulge that secret to me.

You hated us moving to our big scary house. There were all these places to go and explore, but it was too much for you. You climbed up on the kitchen counter and tried to melt into the particle board. Annie tried to comfort you but jumped down when she saw that we noticed her. But you owned this house, you made it your own, finding all the cool hiding spaces in the ceiling tiles and jumping into the windows anytime you could.

Not long after we moved in, we brought home… a new cat. he was a boy cat who wanted to be everybody’s friend. Annie grew annoyed with him quickly, and I think the two of you conspired to barricade him in the litter box. But somewhere along the way, though, you and Wayne (the Boy) became friends. You would run and play and wrestle all the time, even slowing down once to let me feel how you played.

Over the years, you’ve been the negotiator in the kitty kingdom. You’ve quietly put Annie in her place, befriended the Boy so much that when he ran away you moped around the house for a week until he came home. You befriended Jenny, this enthusiastic spitfire of a dog, showing her with patience and gentleness how to interact with kitties. Your farm-cat skills came in handy whenever a mouse crossed the threshold of our home. You loved being outside in the back yard, rolling around in the dirt. And if you snuck outside between my feet, after a few minutes you would hang around on the neighbor’s fence, meowing your head off because being outside wasn’t fun anymore. You love boxes so much that we leave empty Amazon boxes around the house just so you could have somewhere to nest… so much that when we said goodbye to you, we chose a box rather than an urn for your ashes – you would’ve turned your nose up at the urn, anyway.

Dash – the Box Cat

I would give anything for one more cuddle with you, Dasher. One more snuggle with that deep purr rumbling against my chest. One more time laughing at your back-and-forth back-and-forth back-and-forth JUMP! onto my lap on the couch. One more time that you and Jenny negotiate the best way to share the sunbeam streaming through the window, or the best configuration to share her doggie bed. One more time wondering what you’re “meeeeeeeeeeeeeeeeowing” about. One more time getting my attention by stepping on my foot. One more time that you’re so happy to be with me – and I am NOT done petting you, thank you very much! – that you’re biting my wedding ring and purring at the same time.

I want to remember you for all these things, Dash, because that’s who you were. You were funny and quirky and standoffish and SUCH a wonderful cat.

I’ll never forget you.

Rest in peace, Kitten. May you find all the boxes to sleep in and all the dirt to roll in and all of the cuddles you want ONLY when you want them.

Goodbye, my sweet girl… You’re not hurting anymore.

Book Review: Britt-Marie was here

I first heard of the Swedish author Fredrik Backman when Audible had his first novel, “A Man Called Ove”, on a Daily Deal. It was such a charm of a novel that I eagerly snapped up every other book he’d written that had been translated into English. Backman has a knack of fleshing out characters, giving them nuance with turns of phrase that make you laugh out loud or stop in your tracks because that’s absolutely 100% how you feel.

“Britt-Marie was Here” spins off from Backman’s previous novel, “My Grandmother Asked me to Tell you She’s Sorry”. While I read both books, Britt-Marie was here stands sturdily on its own two feet.

About the Book

 

From the best-selling author of the “charming debut” (People) A Man Called Ove and My Grandmother Asked Me to Tell You She’s Sorry, a heartwarming and hilarious story of a reluctant outsider who transforms a tiny village and a woman who finds love and second chances in the unlikeliest of places.
Britt-Marie can’t stand mess. She eats dinner at precisely the right time and starts her day at six in the morning because only lunatics wake up later than that. And she is not passive-aggressive. Not in the least. It’s just that sometimes people interpret her helpful suggestions as criticisms, which is certainly not her intention.
But at 63, Britt-Marie has had enough. She finally walks out on her loveless 40-year marriage and finds a job in the only place she can: Borg, a small, derelict town devastated by the financial crisis. For the fastidious Britt-Marie, this new world of noisy children, muddy floors, and a roommate who is a rat (literally) is a hard adjustment.
As for the citizens of Borg, with everything that they know crumbling around them, the only thing that they have left to hold on to is something Britt-Marie absolutely loathes: their love of soccer. When the village’s youth team becomes desperate for a coach, they set their sights on her. She’s the least likely candidate, but their need is obvious, and there is no one else to do it.
Thus begins a beautiful and unlikely partnership. In her new role as reluctant mentor to these lost young boys and girls, Britt-Marie soon finds herself becoming increasingly vital to the community. And, even more surprisingly, she is the object of romantic desire for a friendly and handsome local policeman named Sven. In this world of oddballs and misfits, can Britt-Marie finally find a place where she belongs?
Zany and full of heart, Britt-Marie Was Here is a novel about love and second chances and about the unexpected friendships we make that teach us who we really are and the things we are capable of doing.

 

It Takes a Village

 

This book is not about soccer (football, I know, but I’m Canadian, okay?). Yes, soccer is played, talked about, argued over, disdained and loved. But this book is not about soccer as much as it is about Borg, the charming, economically depressed town where (to paraphrase one character) you don’t have the luxury to choose your best friend, because even if he’s a criminal he’s the one who helped carry your brother on his back to escape your abusive father. No one is as they seem  – in all the right ways. The community comes together to support the soccer team, not just because it’s soccer (though everyone but Britt-marie loves football), but because it’s all about supporting Borg… and don’t you dare mention that team from “town.”

 

More than One Disabled Character

 

There’s much disability representation in this book. It’s clear that Britt-Marie lives with OCD – compulsive list-taking, cleaning, etc. When I started reading this book, I got incredibly frustrated with the frequent repetitions and rationalizations, until I took a step back and realized that Backman was getting inside Britt-marie’s head – things had to be done a certain way, because there’s no other way to do them.

Other characters use wheelchairs or are blind, and are in various stages on the journey to disability-acceptance. I grew frustrated with the fact that we never know the wheelchair user’s name (“Somebody”), and yet I wonder if it stems from Britt-marie’s thought process of first impressions or memories continuing to colour their interactions.

Borg, overall, seems to be accessible for “Somebody” to move in her wheelchair. She runs the pizzeria/post office/hospital/whatever, doing what needs doing to help keep the town going. It’s clear she has a massive drinking problem, but whether that’s disability or economically related, I couldn’t say. She’s plucky and resourceful and very comfortable with who she is, and as a character (though I never knew her name) I adored her.

 

Bank: “I’m not BLIND… I’m Visually Impaired”

 

Bank is not a major player in Britt-Marie’s story, but she plays a crucial role. She is losing her vision as an adult, and based on her overall grouchy demeanor, she does not appear to have come to a place of acceptance. Bank goes around town with a walking stick that she pokes or hits people with at various convenient opportunities, and totes around a little dog (though very clearly stating that it’s not a guide dog, it’s just a dog). Her home is filthy, and Britt-Marie suspects it’s because she can’t see it, but Bank cooks for herself and travels throughout the small town with a walking cane – not a white cane – because of a bad leg.

Bank played soccer as a youth and was really really good, and – vision or not – when she gets a chance to be an official coach of the Borg team for the upcoming indoor cup, she throws her history into the faces of officials that believe the team is useless. She doesn’t listen to anyone who thinks she can’t do something because she can’t see (though in Borg that’s very few people), but quietly and grumpily and with pluck just goes out and does them.

The reader in me finds her character fascinating and nuanced. The blind person in me, however, is extremely conflicted by Backman’s choices for her. Britt-marie points out to Bank where all the former soccer pictures were hung on her walls while thinking that she keeps a dirty house because of course she can’t see it. And I cringed at Bank’s “accidental” pokes and swats with her stick – in front of a policeman, no less.

 

Conclusion

 

I love the author’s way of turning individuals’ quirks into strengths, of cracking open the shells of people who annoyed me with their habits or attitudes. But everyone has wisdom to share if you just look for it. With a few hiccups along the way, Britt-Marie was here shows just how much we all can impact each other by simply being there.

3.5/5 stars.

Happy birthday, Jenny! If I Could… I’d Give you Cake

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Dear Jenny,

 

I wake up this morning, like any other, and realize that nothing has changed. You wake up with a stretch and a yawn and a dozen enthusiastic tail wags and a scratch and a vocal cue that it is really time to go outside now… and nothing has changed for you, either.

But Jenny, my wonderful, enthusiastic, sassy, intelligent, impulsive, quirky guide dog… You’re FIVE YEARS OLD today! You may not know the significance of this day, beyond the fact that today you get to go for a long run in the dog park (weather permitting), get to spend some time hanging out with some of your favourite people, and enjoy a brand new beef bone and a brand new squeaker ball… but even the idea of this day leaves me breathless.

It started about a month ago on the bus. I get asked regularly about you, Jenny… about what breed you are and how long we’ve been a team and how old you are. The first time I uttered the phrase “She’ll be five in…” I couldn’t believe what was coming out of my mouth.

Five years old!

But it’s more than this.

About the time I started realizing that your FIFTH birthday was coming up the very same week I started a shiny new job, I looked back at our journeys and how truly, truly interconnected they really are, and always have been.

Let’s remember, shall we?

Jenny at 7 weeks old

Jenny at 7 weeks old

When you were born, on March 4, 2012, I was working in an office at a job I loved fiercely. What I didn’t yet know was how much my job would change over the next couple of weeks. I still loved my job, my coworkers, and some of the new changes… but I wasn’t doing the job I was originally hired to do. These changes opened up doorways to my future, just as you would in the years to come; they also gave birth to the advocate in me, something I would need when fighting for access rights, employment, and personal autonomy.

Jenny at 6 months old.

When you were six months old – getting bigger, learning new things, eating pages out of library books – I knew my time at that job would soon come to an end. Growing is painful, and necessary. Change is painful and necessary. But As I was struggling and wriggling out of the safe cocoon of that long-time job, you were getting bigger and changing and taking steps forward and backward and forward again. By the time you turned ten months old, I had turned my face to the wind and waited to embrace new employment opportunities.

Jenny at 10 months old

You grew bigger and stronger, still curious about life. You lost interest in library books and gained interest in training. You made mistakes but were given the opportunity for another chance to make things right. I’ve since learned how very very important this is to you.

jenny-in-chinatown-in-front-of-post-with-asian-writing

You started advanced training in May 2013. At this time, after months of searching, I started work at a call center for a pizza restaurant. I enjoyed the work and the flexibility it offered (enough flexibility to enable us to train together and still keep my job). I know you enjoyed time with your boarder and her dog and time spent with your brother and the other dogs in the training van – everyone told me so.

I got the call that you and I were a match just two days before my birthday. I couldn’t think of a better present. That summer was a challenge for our little family, but we were all excited about welcoming you to it.

I remember our first walk – just after our first meeting – like it was yesterday. You went FAST! This little spitfire of a black lab was going to give me a run for my money. All I remember thinking was… why is this dog swerving? When I learned that you were avoiding all of those poles along the sidewalk that my cane hit on a regular basis, just because that’s what you were trained to do. Our speed, your precise movements… I knew you were the best dog for me. We started training the day before you turned 18 months old.

 

From that point on, we’ve been a team. Sometimes we’ve been so in tune with each other that I can’t believe we’ve only known each other for 3.5 years – think running along the paths of our neighborhood, our trip to New York City, or going through a sudden job loss and more job interviews than I can count. Sometimes our communication clearly sucks – one of us clearly doesn’t want to listen (and usually it’s me). You communicate so effectively that I swear you could learn English if you wanted to – from telling me a best friend is at the door, to signalling your painful allergy symptoms, to groaning your boredom during long meetings… no one needs a Jenny dictionary. You’ve made dozens of friends – both human and dog – and won them all over with your charming personality, your big brown eyes, and open heart. You may never understand what you’ve brought to me. Even this past week in navigating a new office, you’ve impressed me with your willingness to just go with your gut and see if we’re going the right way – and by the end of the week, we’re not lost in a maze of hallways and cubicles anymore.

 

Jenny, my girl… I want to be just like you when I grow up. I want to love my routine but be ok with sudden changes. I want to make snap decisions, right or wrong, and follow the path I take – because my gut (and yours) is usually right. I want to love openly and completely, with no reservations, qualifications, or expectations beyond time, presence, and returned affection. I want to be so joyous that the world will know that it’s a beautiful place… and I want my joy to be so evident that a rare grumpy day will be just as obvious.

 

I wouldn’t be the woman I am today without you. As much as guide dog training taught us to work together, you taught me even more about life. You’ve taught me to let go of my rigid expectations, to go with the flow. You’ve shown me that you can make mistakes – even big ones – and learn from them if you don’t give up. You’ve shown me that it’s OK to be scared but to face your fears anyway. Over the years, we’ve faced some scary situations – from cars pulling out in front of us, to a fight breaking out around us, to the sudden sound of automatic hand dryers. We’ve been through them together. You’ve literally saved my life more than once – from speeding buses or creepy people who want to pick me up at bus stops. You’ve left such a mark on my life and my heart that just last week I got a tattoo of your pawprint with your name inside it. It’s a visible reminder of all the things you’ve given to me so selflessly. I can’t wait to see what the next five years of our journey will bring!

 

Since I can’t give you cake, a ball and a wrestle and a snuggle will have to do. But it doesn’t seem nearly enough.

 

Happy birthday, Jenny Pen. Here’s to many more.

With all my love.

 

P.s. HUGE thanks to BC and Alberta Guide Dogs, Jenny’s puppy raisers, boarders, trainers, my husband, friends, and family, and all of those who’ve loved her along our journey.

P.p.s. Pictures courtesy of BC and Alberta Guide Dogs.